Scoring 103 on your first algebra test is a milestone moment. That’s especially true for Midlothian Middle eighth grader Declan Shelton, who was born with Prader-Willi syndrome. Affecting one in every 15,000 people, this rare genetic condition causes learning difficulties, physical problems and behavioral challenges. Treatment focuses on managing symptoms, which include always feeling hungry.
His mom, Allison Shelton, says Declan loves school and learning: “I would say math is his favorite subject, but he really enjoys all his classes and teachers. He is also particularly loving civics this year. He is incredibly responsible and conscientious, making sure he does all of his homework and studies for upcoming tests and completes projects.”
She praises Chesterfield County Public Schools teachers and staff members for helping Declan achieve success: “Declan has a robust IEP, as he does often need extra assistance or accommodations. We have had a wonderful experience in Chesterfield County in terms of support from special education staff and teachers and administration. Teachers and staff are often quite flexible and creative in how they support Declan; they also have incredible patience!”
While Prader-Willi syndrome significantly affects Declan’s life, he and his parents work to “Live life full.” That’s a motto of the Foundation for Prader-Willi Research, which Declan’s mom credits with providing hope and support since his diagnosis.